Who will be leading the research efforts at these Centers?
NephCure in partnership with the University of Michigan will develop, manage, and lead the NephCure Accelerating Cures Institute (NACI). The NephCure Clinical Care Network is one component of NACI.
The Nephcure Clinical Care Network Steering Committee will consist of representatives from every active Clinical Care Network Center, the coordinating center, and NephCure Kidney International. This Steering Committee will be responsible for consideration of research projects and acceptance of research projects as they arise.
Is there funding to participate as a Center?
Yes, each Center will be funded for their effort and participation in the Care Network. Continuation of funding and maintenance of status as a Network Center will be contingent on meeting outlined performance goals.
Where will the funding come from to support the NephCure Care Network Centers and labs?
The Clinical Care Network Centers will be funded by NephCure with support from local community and private donors. Results from local clinical labs which are part of the medical record of consented participants will be included in the data to be collected from consenting patient participant records. Biospecimen collection is not part of the Clinical Care Network.
Will the Clinical Care Network and NACI be inclusive to all researchers in the glomerular disease field?
The NephCure Clinical Care Network will be governed by its Steering Committee. This committee will be charged with developing policies and procedures around research project review with considerations of the maturation of the Network and feasibility of any research proposal within the network practice environment. While there are no a priori exclusions of researchers, the Network is under construction. We are scheduled to enroll the first patients the summer of 2015.
What are the goals of the Care Network Centers?
1. Expand patient and clinician engagement in glomerular disease quality and research endeavors
2. Improve the quality of care delivery by identifying and sharing best practices
3. Inform research strategy
4. Improve design of and participation in clinical research including clinical trials
5. Disseminate and implement research findings to improve health outcomes